{"id":6867,"date":"2022-10-25T10:23:43","date_gmt":"2022-10-25T08:23:43","guid":{"rendered":"https:\/\/support.mrdm.com\/?page_id=6867"},"modified":"2026-08-04T16:22:04","modified_gmt":"2026-08-04T14:22:04","slug":"epsa","status":"publish","type":"page","link":"https:\/\/support.mrdm.com\/en\/dica\/ernica\/epsa\/","title":{"rendered":"EPSA"},"content":{"rendered":"\n<div class=\"wp-block-group has-rounded-corners-4 has-org-color-10-background-color has-background\" style=\"padding-top:48px;padding-right:48px;padding-bottom:48px;padding-left:48px\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"acf-block-outcome-set-header\">\n  <div class=\"title\">\n    <h1>EPSA<span><\/span><\/h1>\n  <\/div>\n  <\/div>\n\n\n\n<p class=\"wp-block-paragraph\">The European&nbsp;Paediatric&nbsp;Surgical Audit (EPSA) was developed by the Dutch Institute for Clinical Auditing (DICA) in&nbsp;2014 in collaboration with the Dutch Pediatric Surgical Association.&nbsp;It is&nbsp;established&nbsp;to monitor and improve the quality of care for children born with rare congenital surgical conditions.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The EPSA registry currently collects data on eight rare&nbsp;paediatric&nbsp;surgical conditions:&nbsp;Esophageal Atresia,&nbsp;Hirschsprung\u2019s Disease,&nbsp;Omphalocele,&nbsp;Gastroschisis,&nbsp;Congenital Diaphragmatic Hernia,&nbsp;Necrotizing Enterocolitis,&nbsp;Malrotation,&nbsp;Anorectal Malformation.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The cumulative data in the EPSA can be used to support scientific research, quality improvement&nbsp;initiatives&nbsp;and international collaboration. EPSA also&nbsp;assists&nbsp;in expanding our knowledge on these rare diseases by&nbsp;identifying&nbsp;risk factors of (different types&nbsp;of) surgery, evaluating treatment outcomes and comparing practices across regions and countries in Europe.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">More information about&nbsp;ERNICA&nbsp;and&nbsp;DICA can be found via the links below:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.ern-ernica.eu\/registry\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.ern-ernica.eu\/registry<\/a>&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/dica.nl\/registratie\/kinderchirurgie-epsa\/\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/dica.nl\/registratie\/kinderchirurgie-epsa\/<\/a>&nbsp;<\/li>\n<\/ul>\n<\/div><\/div>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"acf-block-topic-blocks\">\n\n    \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/sign-up\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">edit<\/i>\n                    <h3>Sign up<\/h3>\n                    <p>Register your organization<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/sign-up\/sign-up\/?org=ernica&#038;set=epsa\">Sign up<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">General<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/account\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">account_circle<\/i>\n                    <h3>Account<\/h3>\n                    <p>Request an account, log-in and authentication<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/account\/log-in-and-authentication\/?org=ernica&#038;set=epsa\">Log in and authentication<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/account\/my-account\/?org=ernica&#038;set=epsa\">My Account<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">General<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">file_download<\/i>\n                    <h3>Downloads<\/h3>\n                    <p>Data dictionaries, XSD, CRF, XML<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/document-types\/?org=ernica&#038;set=epsa\">Document types<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/documents\/?org=ernica&#038;set=epsa\">Documents<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Downloads<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/survey\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">wysiwyg<\/i>\n                    <h3>Survey<\/h3>\n                    <p>Manual data upload<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/survey\/manual\/?org=ernica&#038;set=epsa\">Manual<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Collect<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/codman\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">analytics<\/i>\n                    <h3>Codman<\/h3>\n                    <p>Dashboard that creates insights in your outcomes<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/codman\/general-information\/?org=ernica&#038;set=epsa\">General information<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/codman\/codman-connect\/?org=ernica&#038;set=epsa\">Codman Connect<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Report<\/span>\n                <\/div>\n\n            <\/div>\n\n\n<div class=\"acf-separator-block\">\n  <hr>\n<\/div>\n\n\n\n<div style=\"height:32px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">ERNICA<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>ERNICA<\/strong>\u202fis the\u202f<strong>E<\/strong>uropean\u202f<strong>R<\/strong>eference\u202f<strong>N<\/strong>etwork for rare<strong>\u202fI<\/strong>nherited and\u202f<strong>C<\/strong>ongenital (digestive and gastrointestinal)\u202f<strong>A<\/strong>nomalies.\u202fThe network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from\u00a0specialised\u00a0healthcare providers across Europe (\u2018ERNICA\u00a0members\u2019). ERNICA has 39\u00a0member hospitals across 20 EU\/EEA countries.\u00a0<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u2018Affiliated&nbsp;partners\u2019&nbsp;and&nbsp;patient&nbsp;organisations\/representatives&nbsp;also&nbsp;form part of&nbsp;the&nbsp;network.&nbsp;<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">ERNICA aims to pool together disease-specific\u00a0expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country.\u00a0Such\u00a0health goals\u00a0include:\u202f\u00a0<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Development of&nbsp;clinical&nbsp;skill&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Increased patient access to high-quality expert care&nbsp;<\/li>\n<\/ul>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Increased diagnosis-specific information available to healthcare professionals,&nbsp;patients&nbsp;and their families\/carers&nbsp;<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">In doing so, ERNICA also&nbsp;seeks&nbsp;to reduce health inequalities across Europe by&nbsp;standardising&nbsp;practices and making high-quality care,&nbsp;information&nbsp;and resources accessible to healthcare providers,&nbsp;patients&nbsp;and their families\/carers across Europe, regardless of where they are&nbsp;located.\u202f&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The European&nbsp;Paediatric&nbsp;Surgical Audit (EPSA) was developed by the Dutch Institute for Clinical Auditing (DICA) in&nbsp;2014 in collaboration with the Dutch Pediatric Surgical Association.&nbsp;It is&nbsp;established&nbsp;to monitor and improve the quality of care for children born with rare congenital surgical conditions.&nbsp; The EPSA registry currently collects data on eight rare&nbsp;paediatric&nbsp;surgical conditions:&nbsp;Esophageal Atresia,&nbsp;Hirschsprung\u2019s Disease,&nbsp;Omphalocele,&nbsp;Gastroschisis,&nbsp;Congenital Diaphragmatic Hernia,&nbsp;Necrotizing Enterocolitis,&nbsp;Malrotation,&nbsp;Anorectal Malformation.&nbsp; [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":6865,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-wide.php","meta":{"_acf_changed":false,"footnotes":""},"page-category":[18],"class_list":["post-6867","page","type-page","status-publish","hentry","page-category-outcome-set"],"acf":[],"_links":{"self":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/comments?post=6867"}],"version-history":[{"count":15,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867\/revisions"}],"predecessor-version":[{"id":12694,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867\/revisions\/12694"}],"up":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6865"}],"wp:attachment":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/media?parent=6867"}],"wp:term":[{"taxonomy":"page-category","embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/page-category?post=6867"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}