{"id":6867,"date":"2022-10-25T10:23:43","date_gmt":"2022-10-25T08:23:43","guid":{"rendered":"https:\/\/support.mrdm.com\/?page_id=6867"},"modified":"2026-03-25T12:56:13","modified_gmt":"2026-03-25T11:56:13","slug":"epsa","status":"publish","type":"page","link":"https:\/\/support.mrdm.com\/en\/ernica\/epsa\/","title":{"rendered":"EPSA"},"content":{"rendered":"\n<div class=\"wp-block-group has-rounded-corners-4 has-org-color-10-background-color has-background\" style=\"padding-top:48px;padding-right:48px;padding-bottom:48px;padding-left:48px\"><div class=\"wp-block-group__inner-container is-layout-flow wp-block-group-is-layout-flow\">\n<div class=\"acf-block-outcome-set-header\">\n  <div class=\"title\">\n    <h1>EPSA<span><\/span><\/h1>\n  <\/div>\n  <\/div>\n\n\n\n<p>The EPSA has been developed by Dutch Institute for Clinical Auditing in 2014 in collaboration with the Dutch Pediatric Surgical Association. First, Dutch, new-born children with the following four diseases were registered: Hirschsprung\u2019s disease, Congenital Diaphragmatic Hernia, Esophageal Atresia and Anorectal Malformation. In 2017 the audit was extended to include patients with Omphalocele and Gastroschisis.<\/p>\n<\/div><\/div>\n\n\n\n<div style=\"height:30px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<div class=\"acf-block-topic-blocks\">\n\n    \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/sign-up\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">edit<\/i>\n                    <h3>Sign up<\/h3>\n                    <p>Register your organization<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/sign-up\/sign-up\/?org=ernica&#038;set=epsa\">Sign up<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">General<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/account\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">account_circle<\/i>\n                    <h3>Account<\/h3>\n                    <p>Request an account, log-in and authentication<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/account\/log-in-and-authentication\/?org=ernica&#038;set=epsa\">Log in and authentication<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/account\/my-account\/?org=ernica&#038;set=epsa\">My Account<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">General<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">file_download<\/i>\n                    <h3>Downloads<\/h3>\n                    <p>Data dictionaries, XSD, CRF, XML<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/document-types\/?org=ernica&#038;set=epsa\">Document types<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/downloads\/documents\/?org=ernica&#038;set=epsa\">Documents<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Downloads<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/survey\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">wysiwyg<\/i>\n                    <h3>Survey<\/h3>\n                    <p>Manual data upload<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/survey\/manual\/?org=ernica&#038;set=epsa\">Manual<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Collect<\/span>\n                <\/div>\n\n            \n                <div class=\"topic-block\">\n                  <div class=\"content\">\n                    <a class=\"link\" href=\"https:\/\/support.mrdm.com\/en\/codman\/?org=ernica&#038;set=epsa\"><\/a>\n                    <i class=\"txt-color-primary\">analytics<\/i>\n                    <h3>Codman<\/h3>\n                    <p>Dashboard that creates insights in your outcomes<\/p>\n                    <ul>\n                      <li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/codman\/general-information\/?org=ernica&#038;set=epsa\">General information<\/a><\/li><li class=\"page_item\"><a class=\"txt-color-primary txt-hover bg-color-white bg-hover\" href=\"https:\/\/support.mrdm.com\/en\/codman\/codman-connect\/?org=ernica&#038;set=epsa\">Codman Connect<\/a><\/li>                    <\/ul>\n                  <\/div>\n                  <span class=\"label\">Report<\/span>\n                <\/div>\n\n            <\/div>\n\n\n<div class=\"acf-separator-block\">\n  <hr>\n<\/div>\n\n\n\n<div style=\"height:32px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">ERNICA<\/h2>\n\n\n\n<p><strong>ERNICA<\/strong> is the <strong>E<\/strong>uropean <strong>R<\/strong>eference <strong>N<\/strong>etwork for rare<strong> I<\/strong>nherited and <strong>C<\/strong>ongenital (digestive and gastrointestinal)\u00a0<strong>A<\/strong>nomalies.\u00a0The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (\u2018ERNICA members\u2019). ERNICA has 40 member hospitals across 12 EU\/EEA countries.<\/p>\n\n\n\n<p>\u2018Affiliated partners\u2019 and patient organisations\/representatives also form part of the network.<\/p>\n\n\n\n<p>ERNICA aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. Such health goals include:&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Development of clinical skill<\/li><li>Increased patient access to high-quality expert care<\/li><li>Increased diagnosis-specific information available to healthcare professionals, patients and their families\/carers<\/li><\/ul>\n\n\n\n<p>In doing so, ERNICA also seeks to reduce health inequalities across Europe by standardising practices and making high-quality care, information and resources accessible to healthcare providers, patients and their families\/carers across Europe, regardless of where they are located.&nbsp;<\/p>\n\n\n\n<p>This registry measures structural, process and outcome indicators and will build further on the EPSA (European\u202fPaediatric\u202fSurgical Audit), which was developed in 2014 in the Netherlands by DICA (Dutch Institute for Clinical Auditing). Currently in the EPSA six diseases are being registered\u202f (Hirschsprung\u202fdisease, Esophageal Atresia, Congenital Diaphragmatic Hernia,\u202fOmphalocele\u202fand\u202fGastroschisis).\u202f\u00a0The cumulative data in the EPSA can be used to conduct scientific research to expand our knowledge of these rare diseases, for instance by identifying risk factors of (different types of) surgery or by identifying structural differences between regions or countries in Europe.\u202f\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The EPSA has been developed by Dutch Institute for Clinical Auditing in 2014 in collaboration with the Dutch Pediatric Surgical Association. First, Dutch, new-born children with the following four diseases were registered: Hirschsprung\u2019s disease, Congenital Diaphragmatic Hernia, Esophageal Atresia and Anorectal Malformation. In 2017 the audit was extended to include patients with Omphalocele and Gastroschisis. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":6865,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-wide.php","meta":{"_acf_changed":false,"footnotes":""},"page-category":[18],"class_list":["post-6867","page","type-page","status-publish","hentry","page-category-outcome-set"],"acf":[],"_links":{"self":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/comments?post=6867"}],"version-history":[{"count":12,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867\/revisions"}],"predecessor-version":[{"id":12240,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6867\/revisions\/12240"}],"up":[{"embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/pages\/6865"}],"wp:attachment":[{"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/media?parent=6867"}],"wp:term":[{"taxonomy":"page-category","embeddable":true,"href":"https:\/\/support.mrdm.com\/en\/wp-json\/wp\/v2\/page-category?post=6867"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}